Just a request.

walter327 · Post by **walter327** » Mon Jul 14, 2008 3:44 pm

Endocrinologist was very pleased with my energy level and attitude today. Drew some blood (Vampire) and will let me know how my testosterone level's doin' (With this around my pituitary, that hormone level dropped like a rock about a year ago. So, I'm on hormone replacement therapy. Workin' perty good, too )

squids · Post by **squids** » Tue Jul 15, 2008 4:43 pm

Oh, please, hahahahahah!! I bet you hatin' your life. I'm sure you'll grow that blood back that the lil bloodsucka took in no time, judgin' by your virileness. Heh.

walter327 · Post by **walter327** » Thu Jul 17, 2008 4:19 pm

The teleconference went very well. Dr. Kurzrock agrees with us that the most important thing is educating the public on these diseases, especially ECD. People go undiagnosed because, at times, doctors don't know what they're looking for and have never heard of the disease.Turns out that, now that I've been on Interferon a while, I may be able to reduce the dosage to 1 mil. units 3 times a week. That would mean a huge savings. My last four syringes came in one shipment totalling $1008. It will still cost the same. But, I can stretch out the time between shipments. There are other drugs that may be effective, such as Pegasus. Interferon 2A and 2B are both useful in fighting the disease. So, if one is less costly, I may be able to switch and take us up one level in the poor house.My Endocrinologist tested my hormone levels, and my testosterone is back up to normal. Funny. I felt that happen. One day it was just like someone flipped a switch on inside me, and I felt much better. Yeah, Squids . Gosh I love dirty minded people (Tastefully dirty minded) .

walter327 · Post by **walter327** » Fri Jul 18, 2008 10:51 am

Talked with my Oncologist's assistant today. He, the Oncologist, does not recommend lowering the dosage of my Interferon. I've been thinking about it and agree. If this level is working, why screw around with it? Also learned that I will likely be on Interferon for the rest of my life, which I plan on bein' a long time . I'm healthy and happy. So, I don't mind so much. My life is what it is for a reason. I don't argue with The Big Guy. The way I look at it, He can make lemonade from rotten fish. I think I'll do my best to follow where He leads .

walter327 · Post by **walter327** » Sun Jul 27, 2008 8:35 am

Finally got a brochure on ECD that I plan to mass copy. I already have two businesses willing to let me set up a small display. Education, education!Ideas started falling out of my head today as far as the inspirational writing/speaking. I picked'em up and plan to put'em on paper .

walter327 · Post by **walter327** » Wed Jul 30, 2008 11:51 am

Oncologist visit Once again the Dr. was pleased with my "progress" today. He did say the disease showed a very small amt. of growth, which led him to wonder about a thresh hold for the Interferon's continued success.He also brought up my Hydrocephalus. The ventricles in my brain are larger than normal, and the exit for spinal fluid from my brain is smaller than normal. He is concerned about the possible long term affects of this, pressure from inside the ventricles pushing out. So, he is referring me to another neurosurgeon to discuss a shunt. Inside I sighed heavily, wondering if I hadn't been through enough already. Ah! God's gotten me through this adventure so far. Who am I to doubt that He can carry me to the finish? I asked him about Pegasys, a time released form of Interferon. He said, unless they found some remarkable progress through further studies, he didn't recommend a change at this stage of the game. Makes sense.I am scheduled for another MRI & abdominal CT scan in mid October. The drama continues........

davewalton · Post by **davewalton** » Wed Jul 30, 2008 11:57 am

Jul 30, 2008, 2:51pm, walter327 wrote:Oncologist visit Once again the Dr. was pleased with my "progress" today. He did say the disease showed a very small amt. of growth, which led him to wonder about a thresh hold for the Interferon's continued success.He also brought up my Hydrocephalus. The ventricles in my brain are larger than normal, and the exit for spinal fluid from my brain is smaller than normal. He is concerned about the possible long term affects of this, pressure from inside the ventricles pushing out. So, he is referring me to another neurosurgeon to discuss a shunt. Inside I sighed heavily, wondering if I hadn't been through enough already. Ah! God's gotten me through this adventure so far. Who am I to doubt that He can carry me to the finish? I asked him about Pegasys, a time released form of Interferon. He said, unless they found some remarkable progress through further studies, he didn't recommend a change at this stage of the game. Makes sense.I am scheduled for another MRI & abdominal CT scan in mid October. The drama continues........ You continue to be in our thoughts and prayers... and you're pretty inspirational as well.

tedsingingfox · Post by **tedsingingfox** » Wed Jul 30, 2008 12:10 pm

Truth, Grace, and Strength under unimaginable pressure.the Big Guy ALWAYS lends a hand when we need it. Always.Ted

walter327 · Post by **walter327** » Mon Aug 04, 2008 1:43 pm

Got that ECD brochure in plain English, now. Our chat group "Leader" did it before I could even figure out how to approach it.Been getting in touch with folks that may provide information on venues for speaking engagements.I've been getting a nudge from my mom and sis' to E-Mail Brian Adams at NBC Nightline and Dr. Sanjay Gupta at CNN.com. Apparently they like handling oddball info like this.Man! I just keep finding more and more work!!

jchitty · Post by **jchitty** » Tue Aug 05, 2008 2:46 am

Jul 30, 2008, 2:51pm, walter327 wrote:Oncologist visit Once again the Dr. was pleased with my "progress" today. He did say the disease showed a very small amt. of growth, which led him to wonder about a thresh hold for the Interferon's continued success.He also brought up my Hydrocephalus. The ventricles in my brain are larger than normal, and the exit for spinal fluid from my brain is smaller than normal. He is concerned about the possible long term affects of this, pressure from inside the ventricles pushing out. So, he is referring me to another neurosurgeon to discuss a shunt. Inside I sighed heavily, wondering if I hadn't been through enough already. Ah! God's gotten me through this adventure so far. Who am I to doubt that He can carry me to the finish? I asked him about Pegasys, a time released form of Interferon. He said, unless they found some remarkable progress through further studies, he didn't recommend a change at this stage of the game. Makes sense.I am scheduled for another MRI & abdominal CT scan in mid October. The drama continues........ Walt, you're an inspiration, and you remind us what TRUE courage is every single day.And you do this with humor and grace too.I don't post on your thread a lot, but you're always in my thoughts.

Just a request.

Re: Just a request.

Re: Just a request.

Re: Just a request.

Re: Just a request.

Re: Just a request.

Re: Just a request.

Re: Just a request.

Re: Just a request.

Re: Just a request.

Re: Just a request.

Who is online