Just a request.

[walter327]

Thank ya, Squids.I know some of the strongest support for me through this has come from you guys. When I'm down, I can come here and get a lift. I'm really grateful for that.Found out through NORD rare diseases that anyone who uses GOODSEARCH, each time a search is done, a penny is donated to rare disease research (Blatant advert , but for a really good cause). Naturally, I couldn't switch fast enough. I get the feeling that we're close enough that every penny counts.

[walter327]

Oh, NORD, for the curious, is at http://www.rarediseases.org., Goodsearch is at www.goodsearch.com.

[walter327]

Just FYI. Since beginning the Saw Palmetto, there have been great and much appreciated improvements .

[walter327]

Had another look-see in my cranium yesterday, Monday. Willinform you of the results when I get the low down .Incidentally, the anniversary party was bang up. We asked for donations to the Histiocytosis Assoc. rather than gifts and got some cash for that purpose. Don't know how many gifts by internet or checks in the mail. My wonderful sis did prep a dark forest cheesecake, a huge chocolate cake and a chocolate truffle. Thankfully, most of that was consumed at the party.But, we were very pleased at the love that was shown by the # of folks that showed. Again, we are very blessed by the love we are shown and that we have for each other.How could I possibly NOT be thankful for this life I've been given?!

[walter327]

Anybody know much about Fentanyl or hormone therapy (testosterone)? I'm gonna ask my doc. But, lately I've been feeling like I'm on a boat in high seas. Going around corners, standing, turning my head quickly all mess with my balance. Then again, straight ahead does to, at times. Plus, I had a particularly bad few days last week. Changed my patch as scheduled. But, I was just completely exhausted until I switched to the next patch. I mean, I know it's a morphine derivative. It's never affected me this way before, though.And, I realize these are opinions. Actually, that's what I'm looking for!Btw, I've gotten another idea for a song. They're not coming as frequently. But, they're still comin'!

[tedsingingfox]

Hang in there, Walt. My Dad's numbers have been on a steady dive for the last three months (first time ever since his Leukemia diagnosis in Sept. of '06), and his new treatments are putting him through the same thing. Like vertigo, but brought on with the slightest and often most mundane movements.You KNOW you have all of our prayers, and as best we can from here...we got your back.Ted

[walter327]

Thanks, Ted. You are all greatly appreciated!I'll be thinking and praying about your Dad.

[squids]

Apr 4, 2009, 11:11am, walter327 wrote:Anybody know much about Fentanyl or hormone therapy (testosterone)? I'm gonna ask my doc. But, lately I've been feeling like I'm on a boat in high seas. Going around corners, standing, turning my head quickly all mess with my balance. Then again, straight ahead does to, at times. Plus, I had a particularly bad few days last week. Changed my patch as scheduled. But, I was just completely exhausted until I switched to the next patch. I mean, I know it's a morphine derivative. It's never affected me this way before, though.And, I realize these are opinions. Actually, that's what I'm looking for!Btw, I've gotten another idea for a song. They're not coming as frequently. But, they're still comin'! Hey walt, bebe. It's unlikely that yo vertigo is caused by testosterone but it could be a blend of things, dependin whatcha takin right now and the Fentanyl could have somethin in it that's messin you up if mixed with somethin else. You probably on a lot of stuff, I'm sho. I'd call the doc's nurse and ask about this; sometimes they need ta check these things out mo closely (I know, believe me, I know how you don't wanna see a doc right now afta seein so many). I'm thinkin a drug interaction of some kind is the most likely culprit heah.Wishin you betta days ahead, as always, honey. Be very careful when ya stand up or turn yo head (could be a sinus infection or an impacted ear too) so you don't hurt ya self. Luvya ta bits! Squids

[walter327]

Once I changed my patch the second scheduled time, things improved drastically. Prob'ly just got a not-so-good dose. Nothin's perfect! Funny how takin' a shot and changing my patch w/in 24 hrs of each other seems to cause a slight headache. A fairly recent occurrence. But, with all the stuff I'm taking, probably makes a little sense (I'll ask the nurse !).Also, figured out the smaller patches I get from K-Mart work better than Wal-Mart's brand. They work better and last longer. They're 'bout the size of a small strip of Scotch tape! Hmmm (???)!Far as hurtin' myself, as long as I land on my head I'll be fine .Thanks so much for how much ya care. Seems to be gett'n' more and more rare in this world!

[walter327]

Had my twice yearly Ophthalmologist check-up yesterday. He said my tests proved perfect, and my Oncologist reported to him that my latest MRI showed no new growth. He said that there appeared to be some slight swelling at the head of my optic nerve. But, he wasn't concerned about that. He took some new photos of my eyes and got my permission to use my case in an upcoming conference. He's looking forward to blowing the "Icons'" minds and helping folks.He also paid us a huge compliment. My wife and I went to a great restaurant ("The BoneFish Grill" ) on our date night a couple of weeks ago. When we were leaving, he saw us, but didn't say anything. In the office, He said that we were one of very few couples that stood out in his mind as being very happy to be together and just LOOKED like we were in love. Corny, maybe. But, it sure made me feel good. It's easy for me to feel like I'm an awfully big burden for my lady. Stuff like that lets me know that she loves me, regardless .