Just a request.

walter529 · Post by **walter529** » Wed Jul 11, 2012 2:38 pm

Well, it is official. Due to my balance issues, my oncologist has set up an appt. w/ a neurologist. He's concerned about the fluid in my cranial cavity causing pressure that throws me off. We're back to talking abt. a shunt. I don't like the idea of someone going into my head. But, Dr. knows best.

ocean · Post by **ocean** » Thu Jul 12, 2012 3:15 am

I just became aware of this thread. You have my support as well, Walter.

walter529 · Post by **walter529** » Sat Jul 14, 2012 3:50 pm

Thank you, Ocean. The support I've gotten here & in the rest of my life means a great deal to me.

remmet · Post by **remmet** » Wed Jul 18, 2012 2:39 am

Hi Walter - I also just became aware of this thread and read through the first 8 pages or so, and then I noticed the year the thread began - 2007! Man, you've been through a long struggle. But from reading your posts, I was so impressed with your sense of humor, resilience, and determination. And judging by the large outpouring of support you've received, it is obvious that you are much loved and esteemed. I don't think we've ever met, but reading about your situation and how you've handled it has been quite moving. I wish you the very best.

Richard

walter529 · Post by **walter529** » Thu Jul 19, 2012 9:21 pm

remmet wrote:Hi Walter - I also just became aware of this thread and read through the first 8 pages or so, and then I noticed the year the thread began - 2007! Man, you've been through a long struggle. But from reading your posts, I was so impressed with your sense of humor, resilience, and determination. And judging by the large outpouring of support you've received, it is obvious that you are much loved and esteemed. I don't think we've ever met, but reading about your situation and how you've handled it has been quite moving. I wish you the very best.

Richard

Thanks so much, Richard.

michael11 · Post by **michael11** » Fri Jul 20, 2012 3:55 am

Hi Walter,

I have been with you on this since day one.

You have always had my admiration,respect and affection.

Mick.

Casey H · Post by **Casey H** » Fri Jul 20, 2012 4:59 am

Hey Walt
Sending good thoughts your way!!

Warmest,

Casey

walter529 · Post by **walter529** » Tue Sep 11, 2012 10:59 am

Well, I got some good news. The video we've been talking about for quite a while is done. It'll be on the ECD (Erdheim-Chester.org) site. But, It's at this Utube link.
http://www.youtube.com/watch?v=Zv5Rv-py ... video_user
It's meant to be encouraging for any1 who's gotten a scary diagnosis.

walter529 · Post by **walter529** » Tue Sep 11, 2012 11:29 am

Oh! I also have a CD recording of the "sermon" I was asked to give back in June called "Faith in the Face of Fear". I'm trying to figure out how to get it on-line. It's patch day, Fentanyl. So, you'll have to forgive my ignorance

.

walter529 · Post by **walter529** » Tue Sep 11, 2012 4:37 pm

AH!! The only way I can figure is by going to thevine.cc (Vine of the Mountains), then go to "Podcasts" at the top of the page, then scroll down to June 3, 2012. From there it's automatic. I wish I could make it easier. But, that's the best I could think of. DADBURNIT!!!

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