Just a request.

walter327 · Post by **walter327** » Sat Feb 21, 2009 11:51 am

Just learned Rare Disease Day is Feb. 28. You can learn more about it at www.erdheim-chester.org & NORD- www.rarediseases.org.I'm working on getting a letter out to our gov. and maybe even the prez.

walter327 · Post by **walter327** » Mon Feb 23, 2009 2:37 pm

Got a call from my Endocrinologist today. They told me to cut back to a tube of gel every other day and didn't seem terribly concerned. They did say they needed to keep an eye on things, though.

squids · Post by **squids** » Mon Feb 23, 2009 4:18 pm

Well, ya know, that's their job, honey. And yo job is ta take the gel every otha day!

anne · Post by **anne** » Wed Feb 25, 2009 6:31 am

Hey Walt - good to see you posting here again

walter327 · Post by **walter327** » Fri Feb 27, 2009 5:37 pm

Oh, yeah! It just took a little time for anything interesting to happen again. Then, as usual, it started snowballing. S'alright. Keeps life from getting boring.

anne · Post by **anne** » Fri Feb 27, 2009 5:43 pm

Keeps life from getting boring. I hear ya' - that is how things go here as well

ernstinen · Post by **ernstinen** » Fri Feb 27, 2009 11:52 pm

Hey Walter!Just want to let you know that we're here with ya!My wife has been going through a year of hypoglobulinenmia (sp?) IV's, and she finally starting to feel better.She's feeling stronger, as we hope you do soon!Best Regards,Ern

orest · Post by **orest** » Sat Feb 28, 2009 12:29 am

Hi Walter! You are in my prayers now! I'm glad you are spending time with your woman as well, it's so important to be there for one another, no things in the world can ever substitute for the human relationship. /Alexander

walter327 · Post by **walter327** » Sat Feb 28, 2009 10:33 am

Feb 28, 2009, 2:29am, orest wrote:Hi Walter! You are in my prayers now! I'm glad you are spending time with your woman as well, it's so important to be there for one another, no things in the world can ever substitute for the human relationship. /Alexander I agree. It's sad how many people don't get that. Seeing the number of people that care about and love me has made my life much more joyful and fulfilling. All the money and possessions in the world couldn't take the place of that.

squids · Post by **squids** » Sat Feb 28, 2009 5:17 pm

It's always good ta know the impact we have on others. Helps us realize our responsibilities too and gives a feeling of satisfaction (and surprise sometimes too, it's amazing the people we touch and we have absolutely no idea!). That's what I hear anyway. I know you've made an impact on me, walt.

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