Just a request.

[Casey H]

Quote:A diagnosis at last. Try Erdheim-Chester Disease, then Interferon on the net. Doc says, after a full-body bone and CT scan, I have the classic symptoms.WalterI did look this up and although it appears to be a very serious thing, hopefully the treatment with interferon will give you good results. It looks like this treatment is fairly new? I know it's hard, but stay positive and hopeful. The mind has so much control over the body.Thoughts are with you... Casey

[jchitty]

Walter, from what I've read of your posts, you seem to have a wonderful upbeatness about you....that is what will help you in the days to come. They've made so many new advances in medical science now that really help people....good luck with your interferon treatments. We'll say our continued prayers for you.

[hummingbird]

Quote:A diagnosis at last. Try Erdheim-Chester Disease, then Interferon on the net. Doc says, after a full-body bone and CT scan, I have the classic symptoms.Hey Walter, I'm thinking of you. Stay positive, take joy in every day, and in all the love around you.warmlyHummin'bird

[grannyflats]

Oh Walter, you do make me laugh. I know exactly where you're coming from ... and going probably.Winter of 01, I went to the doctor and said " I can't breathe " "You're too fat", she said and told me to go on a diet. $I didn'tWinter of 01, I went to the doctor and said "I can't breathe." "You're too fat," she said and told me to go on a diet. $I didn't.Winter of 03, I went to the doctor and said, "I can't breathe. I cried. "You're stressed, and depressed," she said, and sent me to a shrink. $$$He sent me to an "outpatient" clinic to get happy. Man were they crazy there. I was happier, but still couldn't breathe. But summer was coming. $$$$$$$$$$$$Winter of 04, I went to the doctor and said..... you knowShe said, you're still too fat, you're a little depressed, and you might have a cold. Sigh. $You know what happened in 05. YepShe finally took an XRAY! "OMG! You have a lung disease!!", she said and pawned me off on a pulmonologist. Tests, CT scans, doctors etc. $$$$$$$$$$$$$$$$$$$$$$$. Finally a diagnosis. Actually two of them. I can't pronounce either one, neither is curable, or particularly treatable. Now of course they want an open lung biopsy to find out which of these two nasty things I have. Costs major $$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ and a piece of my lung which I am not happy about turning over. So I say..."And the reason you need to do this is why?" "Because we have to know which it is""Why?" "So we can watch it.""To educate yourselves?" "Well..... I guess you could put it that way."AHA! Now I understand how medicine works. So I went to a shaman. Bet I could make a song out of that

[walter327]

Ah, good to know someone gets my humor. Alleviates some of the pressure when I can joke about it. I am totally blown away by the response to my problem. Y'all awright. Does my heart good to find folks who ain't even met me really do care.Much gratitude,Walt

[walter327]

A confirmation yesterday that the Oncologist has decided on Interferon. Wifey and I just want to check on some "reproductive" stuff first. After that, lets get this roller coaster going.

[sgs4u]

The Don Henley tune is coming to my mind - "I Will Not Go Quietly." Walter, did you notice your birthday thread? http://taxi.proboards27.com/index.cgi?a ... 586&page=1

[aubreyz]

Walter,I've not posted on this thread but have kept up with it. Just wanted you to know that I'm sure there are many others out there like me who haven't posted, but still keep you in our thoughts and prayers.Sincerely,Aub

[walter327]

Quote:The Don Henley tune is coming to my mind - "I Will Not Go Quietly." Walter, did you notice your birthday thread? http://taxi.proboards27.com/index.cgi?a ... age=1Shoot!! I ain't goin' nowhere. God ain't done with me yet. I have a young lady over at Christian Songwriter's assoc. who's interested in one, possibly two songs!! Walt

[walter327]

The folks at MD Anderson in Houston really want to get their claws on me. They have the Doc who found that Interferon helped with ECD. Only one problem. It's $14,000 just to get through the front door. Anybody wanna make a donation ? I got some songs for auctioning.....starting price, $14,000. .They would be really thorough, though. Probably a PET scan on top of all the other scans I've already had done. I'm just about ready to get off this roller coaster ride!!